References

Research Articles

Abecasis, M., Cross, N. C. P., Brito, M., Ferreira, I., Sakamoto, K. M., Hijiya, N., Score., J., Gale, R. P. (2020) Is cancer latency an outdated concept? Lessons from chronic myeloid leukemia, (Abstract only) (p. 2279) Leukemia, 34: 2279-2284.

Bajaj, J., Diaz, E., Reya, T. (2019) Stem cells in cancer initiation and progression, Journal of Cell Biology.

Botta, L., Gatta, G., Trama, A., Bernasconi, A., Sharon, E., Capocaccia, R., Mariotto, A. B., the RARECAREnet working group. (2020) Incidence and survival of rare cancers in the US and Europe, Wiley Online Library.

Carpenter, D. O., Bushkin-Bedient, S. (2013) Exposure to Chemicals and Radiation During Childhood and Risk for Cancer Later in Life, Journal of Adolescent Health, 52(5), S21-S29.

Casali, P. G., Trama, A. (2020) Rationale of the rare cancer list: a consensus paper from the Joint Action on Rare Cancers (JARC) of the European Union (EU), ESMO Open, 5.

Castaño-Vinyals, G., Aragonés, N., Pérez-Gómez, B., Martín, V., Llorca, J., Altzibar, J. M., Ardanaz, E., de Sanjosé, S., Jiménez-Moleón, J. J., Tardón, A., Alguacil, J., Peiró, R., Marcos-Gragera, R., Navarro, C., Pollán, M., Kogevinas, M., MCC-Spain Study Group. (2015) Population-based multicase-control study in common tumors in Spain (MCC-Spain): rationale and study design, Gaceta Sanitaria, Volume 29, Issue 4, 2015, pp.308-315.

Frank, C., Sundquist, J., Yu, H., Hemminki, A., Hemminki, K. (2016) Concordant and discordant familial cancer: Familial risks, proportions and population impact, International Journal of Cancer: 140, 1510–1516.

Friedman, G. D., Quesenberry, C. P. (2000) Spousal concordance for cancer incidence, ACS Journals.

García-Pérez, J., Boldo, E., Ramis, R., Pollán, M., Pérez-Gómez, B., Aragonés, N., López-Abente, G. (2007) Description of industrial pollution in Spain, BMC Public Health 7, 40.

García-Pérez, J., Lope, V., Pérez-Gómez, B., José Molina, A., Tardón, A., Santos, M. A. D., Ardanaz, E., O’Callaghan-Gordo, C., Altzibar, J. M., Gómez-Acebo, I., Moreno, V., Peoró, R., Marcos-Gragera, R., Kogevinas, M., Aragonés, N., López-Abente, G., Pollán, M. (Abstract) (2018) Risk of breast cancer and residential proximity to industrial installations: New findings from a multicase-control study (MCC-Spain), Environmental Pollution, Volume 237, pp. 559-568. Published by Elsevier Ltd.

García-Pérez, J., Gómez-Barroso, D., Tamayo-Uria, I., Ramis, R. (2019) Methodological approaches to the study of cancer risk in the vicinity of pollution sources: the experience of a population-based case–control study of childhood cancer, International Journal of Health Geographics 18, 12.

García-Pérez, J., Larrea-Baz, N. F., Lope, V., Molina, A. J., O’Callaghan-Gordo, C., Alonso, M. H., Rodríguez-Suárez, M. M., Mirón-Pozo, B., Alguacil, j., Gómez-Acebo, I., Ascunce, N., Vanaclocha-Espi, M., Amiano, P., Chirlaque, M. D., Simó, V., Jiménez-Moleón, J. J., Tardon, A., Moreno, V., Pollán, M. (2020) Residential proximity to industrial pollution sources and colorectal cancer risk: A multicase-control study (MCC-Spain), Environment International, Volume 144, Published by Elsevier Ltd.

Gatta, G., Maarten van der Zwan, J., Casali, P. G., Siesling, S., Paolo Dei Tos, A., Kunkler, Otter, R., Licitra, L., Mallone, S., Tavilla, A., Trama, A., Capocaccia, R., The RARECARE working group. (2011), Rare cancers are not so rare: The rare cancer burden in Europe, European Journal of Cancer 47: 2493-2511.

German, R. R., Fink, A. K., Heron, M., Stewart, S. L., Johnson, C. J., Finch, J. L., Yin, D., the Accuracy of Mortality Study Group. (2021) The Accuracy of Cancer Mortality Statistics Based on Death Certificates in the United States. (Abstract only). Cancer Epidemiology, 35 (2).

Greenlee, R. T., Goodman, M. T., Lynch, C. F., Platz, C. E., Havener, L. A., Howe, H. L. (2010) The Occurrence of Rare Cancers in U.S. Adults, 1995–2004, Public Health Rep. 2010 Jan-Feb; 125(1): 28–43.

Hemminki, K., Jiang, Y. (2002) Cancer risks among long-standing spouses. British Journal of Cancer 86, 1737–1740.

Hemminki, K., Sundquist, J., Brandt, A. (2011) Do discordant cancers share familial susceptibility?, European Journal Of Cancer 48, 1200-1207.

Jacquez, G. M., Sabel, C. E., Shi, C. (2015) Genetic GIScience: Toward a Place-Based Synthesis of the Genome, Exposome, and Behavome, Annals of the  Association of American Geographers. 2015; 105(3): 454–472.

Johnson, C. J., Hahn C. G., Fink A. K., German R. R. (2012) Variability in Cancer Death Certificate Accuracy by Characteristics of Death Certifiers, (Abstract only). American Journal of Forensic Medical Pathology, 33(2).

Keat, N., Law, K., McConnell, A., Seymour, M., Welch, J., Trimble, T., Lacombe, D., Negrouk, A., (2013). International Rare Cancers Initiative (IRCI), Ecancermedicalscience. 2013; 7: ed20. PubMed.

Lund, J. L., Harlan, L. C., Yabroff, K. R., & Warren, J. L. (2010) Should Cause of Death From the Death Certificate Be Used to Examine Cancer-Specific Survival? A Study of Patients With Distant Stage Disease, Cancer Investigation, 28(7), p. 6.

Nadler, Diana L., and Zurbenko, Igor G. (2014) Estimating Cancer Latency Times Using a Weibull Model, Advances in Epidemiology, vol. 2014, Article ID 746769, 8 pages.

Nikiforov Y, Gnepp D. R. (1994) Pediatric thyroid cancer after the Chernobyl disaster. Pathomorphologic study of 84 cases (1991-1992) from the Republic of Belarus. Cancer. 1994 Jul 15;74(2):748-66.

Penson, D. F., Albertsen, P. C., Nelson, P. S., Barry, M., Stanford, J. L. (2001) Determining Cause of Death in Prostate Cancer: Are Death Certificates Valid?, JNCI: Journal of the National Cancer Institute, 93(23), p. 1822-1823.

Saerens, A., Ghosh, M., Verdonck, J., Godderis, L. (2019) Risk of Cancer for Workers Exposed to Antimony Compounds: A Systematic Review, International Journal of  Environmental Research and Public Health. Nov; 16(22): 4474.

Stern, A.C., & Emeritus Professor (1982) History of Air Pollution Legislation in the United States, Journal of the Air Pollution Control Association, 32:1, 44-61.

Takasuga, T. et al., (2020) Comprehensive monitoring of chlorinated aromatic and heteroaromatic pollutants at sites contaminated by chlorine production processes to inform policy making, KeAi Communications Co., Ltd., Production and hosting by Elsevier B.V., pp. 133-142.

Turner, M.C., Andersen, Z.J., Baccarelli, A., Diver, R., Gapstur, S.M., Pope, C.A.III., Prada, D., Samet, J., Thurston, G., Cohen, A., (2020) Outdoor air pollution and cancer: An overview of the current evidence and public health recommendations, CA: A Cancer Journal for Clinicians, Volume 20, Issue 6, November/December 2020, Pp. 460-479.

Weires, M. et al., (2011) Clustering of concordant and discordant cancer types in Swedish couples is rare, European Journal of Cancer. 2011 Jan;47(1):98-106.

Books

Berger, J. J. (1987) Restoring the Earth: How Americans Are Working to Renew Our Damaged Environment, Alfred A. Knopf and Doubleday, Anchor Books, pp. 130-152.

Billott, R., (2020) Exposure: Poisoned Water, Corporate Greed, and One Lawyer’s Twenty-Year Battle against DuPont, Simon & Schuster.

Brown, P. (2007) Toxic Exposures: Contested Illnesses and the Environmental Health Movement, Columbia University Press.

Dempsey, D. (2001) Ruin & Recovery: Michigan’s Rise as a Conservation Leader, University of Michigan Press, pp. 225-233.

Fagin, T. (2013) Toms River: A Story of Science and Salvation, Bantam Books.

Lerner, S. (2004) Diamond: A Struggle for Environmental Justice in Louisiana’s Chemical Corridor, the MIT Press.

Lerner, S. (2010) Sacrifice Zones: The Front Lines of Toxic Chemical Exposure in the United States, the MIT Press.

Markowitz, G., Rosner, D. (2013, updated with new Epilogue) Deceit and Denial: The Deadly Politics of Industrial Pollution, University of California Press.

Steingraber, S. (2010) Living Downstream: An Ecologist’s Personal Investigation of Cancer and the Environment (2nd ed.), Cambridge, MA: Da Capo Press.

Other Information Resources

Air Quality Politics in Michigan (circa 1970s). Give Earth a Chance: Environmental activism in Michigan, Created by Michigan in the World and the Environmental Justice HistoryLab, projects of the U-M History Department. (also, Toxic Substance Control Commission)

America’s Environmental Health Gap: Why the Country Needs a Nationwide Health Tracking Network (2000). The Pew Environmental Health Commission, Environmental Health Tracking Project Team, Johns Hopkins School of Hygiene and Public Health Department of Health Policy and Management.

Assessment Of Drinking Water Consumption Or Taste And Odor Problems In The White Lake Area Of Concern (2013). Hipshier, C., Project Manager, Muskegon Conservation District, White Lake Public Advisory Council, Restoring White Lake.

ATSDR Public Health Implications of Hazardous Substances in the Twenty-Six U.S. Great Lakes Areas of Concern (2007 Draft). (See Table of Contents and Executive Summary PDF), Great Lakes Areas of Concern (AOC) Reports, Agency for Toxic Substances and Disease Registry, Department of Health & Human Services.

ATSDR Studies on Chemical Releases in the Great Lakes Region (2008 Final Report). (See Table of Contents and Executive Summary PDF, and Appendix 3 PDF), Great Lakes Areas of Concern (AOC) Reports, Agency for Toxic Substances and Disease Registry, Department of Health & Human Services.

Background Note on Pediatric snd Rare Cancers (2021). European Parliament.

Boundary Waters Treaty (1909). History of the International Joint Commission. (see also, Role of the International Joint Commission).

Census Tract, Glossary, U.S. Census Bureau. (see also, U.S. Census Bureau information on census tracts provided by the CDC).

Chemours-Montague Facility Corrective Action Information, Hazardous Waste Compliance and Enforcement, Michigan Department of Environment. Great Lakes, and Energy (EGLE).

Cost-efficient Contamination (1981). Trost, C., The Alicia Patterson Foundation.

Explanation of Standardized Incidence Ratios (2010). Fact Sheet: New Jersey Department of Health & Senior Services, Cancer Epidemiology Services.

Exposure History Form PDF (2015). (see Taking an Exposure History, Appendix I), Agency for Toxic Substances and Disease Registry.

Factors to Consider When Using Toxics Release Inventory Data, U.S. EPA.

Family Health History and Cancer, CDC.

Final Site Report, White Lake Tannery Bay Task Order Number # 60 Whitehall, MI (2013). EPA.

Great Lakes Areas of Concern, (see also, Beneficial Use Impairments).

Great Lakes Water Quality Agreement (1972, 1983, 1987, 2012). U.S.EPA.

Hazardous Waste Cleanup: Occidental Chemical Company Facility – Montague, Michigan. U.S. EPA.

Is a Health Study the Answer for Your Community? A Guide for Making Informed Decisions (2015). Scammel, M. K., Howard, G. J., Department of Environmental Health, Boston University School of Public Health; Department of Environmental Studies, Dickinson College; Center for Health, Environment, and Justice; Toxics Action Center, Boston.

It’s Time for a New Kind of Electronic Health Record (2020). Glaser, J., Harvard Business Review.

How To Interpret “Cancer Rates by Census Tract” (2010). Delaware Department of Health and Social Services.

How ZIP codes nearly masked the lead problem in Flint, (2016). Sadler, R. C., The Conversation.

The Links Between the Environment and Health (1978). Schneiderman, M. A., Proceedings of the National Conference on the Environment and Health Care Costs. August 15, 1978, pp. 33-46.

Michigan. Toxic Substance Control Commission (1978-1989). State Archive of Michigan.

Minimum Latency & Types or Categories of Cancer (2012). Howard, J., World Trade Center Health Program, October 2012, revised November 2014.

National Pollutant Discharge Elimination System (NPDES), Michigan Department of Environment. Great Lakes, and Energy (EGLE).

Possible Exposure Pathways During Emergencies, U.S. Environmental Protection Agency (EPA).

Profiles of General Demographic Characteristics, 2000 Census of Population and Housing, United States Census Bureau.

Rare Cancer Classification (2020). Surveillance, Epidemiology, and End Results Program (SEER), National Cancer Institute.

Remedial Action Plan for the White Lake Area of Concern (1987 RAP). Michigan Department of Natural Resources (MDNR) Surface Water Quality Division.

Removal Recommendation: Restrictions on Drinking Water Consumption or Taste and Odor Problems Beneficial Use Impairment (2014). Michigan Department of Environmental Quality (MDEQ), Office of the Great Lakes, Areas of Concern (AOC).

Report to the International Joint Commission by the Health Professionals Advisory Board: Health and Environmental Data in the Great Lakes Basin – Integrating Data Collection and Analysis (2013). Bassil, K., Chan, B., Sanborn, M., Priority on Capacity and Capability to Coordinate and Deliver Science Including Data Integration and Access, 2012-2015 Priority Series.

Restoring White Lake: Exploring White Lake’s Environmental History (2012). Cabala, T., Great Lakes Consulting, and White Lake Community Library.

Review of ATSDR’s Great Lakes Report Drafts (Letter Report) (2008). National Academies of Sciences, Engineering, and Medicine. 2008. Review of ATSDR’s Great Lakes Report Drafts: Letter Report. Washington, DC: The National Academies Press.

Risk Factors for Cancer, National Cancer Institute. (also see The Genetics of Cancer, and Familial Cancer Susceptibility Syndromes.)

The Small Numbers Problem Part 1: What you see is not necessarily what you get, (2010). The Small Numbers Problem–Part 2 (2011). The Small Numbers Problem Part 3: Diagnostics for the small numbers problem (2011). Jacquez, G., Biomedware: Geospatial Software and Research.

Social Explorer: Source for census tract populations by decade.

Summary of the Toxic Substances Control Act, Laws & Regulations, EPA.

Supplemental Guidance for Assessing Susceptibility from Early-Life Exposure to Carcinogens (2005). U.S. Environmental Protection Agency, Washington, DC, EPA/630/R-03/003F.

Suppression of Rates and Counts for reliability and confidentiality, explained by the CDC.

Surveillance of Rare Cancers in Europe (RARECARE), Executive Agency for Health and Consumers (EAHC) of the European Commission.

Taking an Exposure History PDF, Case Studies In Environmental Medicine (CSEM), Agency for Toxic Substances and Disease Registry.

Toxicology Curriculum for Communities Trainer’s Manual (2015). Agency for Toxic Substances and Disease Registry.

U-M researchers to track cancer risk from environmental exposures, (2021) Fawcett, M., The University Record, University of Michigan.

Veterans, Military Service, and Cancer Risk (last reviewed, 2020). OncoLink.

White Lake Area of Concern Final Delisting Report (2014). Riley, J., Perrecone, J., Mund, G., Michigan Department of Environmental Quality.

White Lake Area of Concern Remedial Action Plan: 1995 Update (1995 RAP). White Lake Public Advisory Council, Michigan Department of Natural Resources.

White Lake Community Action Plan Update (2002, 2005). U.S. EPA.

White Lake Public Advisory Council (WLPAC) (1992). Restoring White Lake.

White Lake rising: Toxic hot spot no more, lake moves beyond chemical past (2014). Hausman, J. S., MLive, Muskegon MI, Advance Local Media LLC.

Wind Rose Resources, Natural Resources Conservation Service National Water and Climate Center, United States Department of Agriculture.

With $13M Grant, Researchers Will Track Cancer Risk From Environmental Exposures (2021). School of Public Health, University of Michigan.

Media Reports: White Lake History and this Project

Mapping Cancer Cases in a Small Town (2012). The Environment Report, Rebecca Williams, Michigan Radio.

2014-06-25, White Lake Moves Beyond its Toxic Past, Jim Lynch, Special Report, Detroit News.

2014-06-25, Whistle Blower’s belief in justice outweighed backlash, Jim Lynch, Special Report, Detroit News.

2014-06-25, White Lake looks toward a brighter future, Jim Lynch, Special Report, Detroit News.

2014-06-25, Families continue to question health effects of Hooker contamination, Jim Lynch, Special Report, Detroit News.

2013-05-28, Cancer Mapping Project Gains New Life, May 28, 2013, WLB Staff, White Lake Beacon.

2011-04-02, White Lake cancer-mapping project gets national attention, John S. Hauseman, Muskegon Chronicle.

2011-04-14, Controversy rises over identification of disease clusters, Thea Hassan, Great Lakes Echo.

2010-09-10, Cancer crisis? Muskegon County group seeks answers in White Lake, John S. Hauseman, Muskegon Chronicle.

Maps

Maps by Rick Sadler, Associate Professor, Division of Public Health, Michigan State University:

1. Area surveyed for this project, showing municipalities and census tracts.

2. First full- and part-time addresses of participants that had Lived in the White Lake area as children aged 0-15

3. Four maps: Residence Locations at Estimated Onset and Diagnosis, each comparing cancers with short, medium and long latencies:

a. Map 1. 314 participants that were living at the same address at onset and diagnosis.

b. Maps 2a & 2b. 134 participants that lived at one address in the White Lake Area at estimated onset, and a different White Lake Area address at diagnosis.

c. Map 3. Estimated address at onset of 103 participants that had moved away prior to diagnosis, or were living part time in the White Lake area at diagnosis.

2010 Census Tract Reference Map (Screenshot): Muskegon County, MI: U.S. Census Bureau.

49437 Zip Code Boundary Map, Michigan HomeTown Locator.

49461 Zip Code Boundary Map, Michigan HomeTown Locator.

Areas of Concern Map 2018: Great Lakes Now.

Cities, Townships, and Villages of Muskegon County, Michigan, Muskegon County Equalization Mapping and GIS, April 2006.

White Lake Area, Google Earth, Satellite, Imagery 2022.

White Lake Area Environmental History Project Banner, a map of contaminated sites and timeline of events, (Derby Design, LLC), downloadable as a full-sized PDF from the Subject Matter Resource Collection page of Restoring White Lake.